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IN-vision is aiming to create a comprehensive and confidential database of people with nystagmus, who are happy to be contacted by us to see if they would be able to participate in certain research projects as they happen. Not only will the information we hold help to build a picture about nystagmus in the UK, but will greatly assist researchers.

With each project we will provide as much information as possible and on each occasion participants are completely in control of whether to participate or not.

By nominating yourself or your child for our database, you will be helping with essential research and very likely come away with a better understanding of the condition. You will also be kept up-to-date with current research into nystagmus. Of course, all details will be treated with the utmost confidence.

To sign up, please complete the form below. It may be that some of these are not known, but a ‘best guess’ is usually enough.

Message to Parents and Carers of children aged between 6 months and 5 years

Help needed to assist in research looking at the characteristics and impact of Nystagmus in children

Asma Zahidi Cardiff University

The Research Unit for Nystagmus (RUN) at Cardiff University is looking for volunteers to help with a study they are doing to look at the characteristics of nystagmus in children with and without Down’s syndrome and how it affects their vision and eye movements. The study is led by PhD student, Asma Zahidi.

The session will involve a vision test by a qualified optometrist, followed by an eye movement recording, while the child looks at a few cartoons on a screen. The whole session will take approximately 1 to 1.5 hours. There will take a break after the vision test, before proceeding with the eye movement recording. The team at Cardiff will try to make the experience fun, and there will be no drops!

The sessions will be held during weekdays and will cover travel expenses to Cardiff up to £50 per child. The findings will be reported in my PhD thesis, hopefully at the end of 2018, and we plan to publish our findings in an open access journal.

The criteria of the participants is children with infantile nystagmus between the ages of 6 months and 5 years old.

The findings will be reported in Asma’s PhD thesis, hopefully at the end of 2018, which is planned to be published via an open access journal.

For more information email Asma Zahidi or call 029 2087 0556.