The Trustees are supported by a Research Advisory Panel. The role of the panel is to provide expert guidance to the organisation, including recommendations of research projects which merit our grant support and monitoring the outcomes. Our panel members have access to the expertise of an outstanding group of peers from whom we can seek advice as required.
Prof. Jon Erichsen
We are fortunate to have secured the commitment of Prof Jon Erichsen, and Mr Jay Self. Jon is our first Scientific Adviser (SA) and Panel Chair and is a Senior Lecturer in Optometry and Vision Sciences at Cardiff University. More information about Jon is available here. More information about Jay and his work is available here.
Mr Jay Self BM FRCOphth PhD
Jay Self, is our first Medical Adviser on the RAP, Consultant Paediatric Ophthalmologist at the University Hospital in Southampton.
He is a specialist in paediatric eye problems and spends half his week in this NHS role and half as a Senior Lecturer/Researcher at the University of Southampton. He completed his PhD in 2009 and has trained in Southampton and Manchester. He has three children of his own and is passionate about helping children with eye conditions and has a particular research interest in genetics and nystagmus. Jay combines clinical and laboratory research in order to identify the causes of nystagmus and study potential treatments. He shares the IN-vision belief that children and adults with nystagmus should receive a minimum standard of clinical care and investigation.
Jay is keen for patients and families with nystagmus to contact him directly if they are interested in participating in nystagmus research firstname.lastname@example.org
Rebecca McLean (MSc, PhD) is a Research Associate working in the Ophthalmology Group at the University of Leicester.
Rebecca has worked in the field of nystagmus for many years and one of her main roles is running clinical trials for potential treatments for nystagmus. Over the years, Rebecca has been in contact with numerous people with nystagmus and their families, and, after listening to their trials and tribulations, came to realise that nystagmus can impact upon an individual greatly. Hearing these recalls from people steered her into an interest in quality of life and how nystagmus affects an individual on a daily basis. Rebecca’s plan for the future is to be able to accurately measure the impact of nystagmus and help others to understand the specific needs of people who have it. Rebecca can be contacted directly at email@example.com.
Maria qualified in 1998 from St Bartholomew’s Medical School. She has always had an interest in nystagmus and completed a PhD in the development of nystagmus and visual acuity in children at the Institute of Child Health and Great Ormond Street Hospital (awarded 2009), which involved writing a computer program as a novel method of analysing nystagmus waveforms, and applying this to eye movement recordings taken from infants, children and adults with infantile nystagmus (IN).
She has been at Moorfields Eye Hospital since 2012, as a consultant ophthalmologist in paediatrics and strabismus. She is actively involved in developing an eye movements service at Moorfields. She has set up both a research lab (for the assessment of children and adults) aswell as a clinical paediatric nystagmus clinic. The main focus of her research is looking at the development of visual function in IN, the effects of IN on visual function and potential treatments in IN.
Anyone interested in research can contact her at Maria.Theodorou@moorfields.nhs.uk.
Otherwise clinical referrals can be made to her directly via GPs (she is based at both Moorfields and Moorfields@Northwick Park)