IN-vision

If you are the parent/carer of a child that is newly diagnosed with Infantile Nystagmus and would prefer just to talk to someone, then IN-vision is here to help. Please request either a call back or email from us using the form opposite, whichever means of communication you prefer and we will contact you. The information gathered here has come from a variety of sources and is correct to the best of the author’s knowledge at time of writing. Please always check with the relevant body for the latest information.

IN-vision is grateful to Bucks Health Care and Hackney Learning Trust for the assistance and support given in compiling the information on these pages.

Checklist of services to contact for parents of children with visual impairments

(compiled by Hackney Learning Trust)

• Qualified Teacher for Visual Impairment in the Local Education Authority: To provide advice and support about development, learning and education.
• Portage Service (if there is one, in the Local Education Authority): Advice about general development of pre-schoolers with special needs
• Parent advice service in the Local Education Authority: To offer advice on local services and systems
• Local Children’s Centre: For information on local facilities and services
• Sensory Team in Social Services: To provide advice on independent living skills, mobility at home and applying for Disability Living Allowance.
• RNIB and other charities: To offer advice, counselling and help contacting other parents.
• Eye hospital: For registration as Sight Impaired or Severely Sight Impaired