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Nystagmus Patient Information Day

Description
Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.

people in a meeting

Nystagmus Patient Information Day
at Clinical Tutorial Complex
Moorfields Eye Hospital 15 Ebenezer Street, London, N1 7NP

Date and Time
Sat 24th November 2018
09:30 – 16:00

The agenda for the day:

Morning (AM)
10:00 – 10:15: Refreshments and registration
10:15 – 10:20: Housekeeping & aims of the day
10:20 – 10:35: Talk: the patient journey and current management of nystagmus
10:35 – 10:50: Talk: current research into nystagmus
10:50 – 11:10: Talk: perspectives from someone living nystagmus
11:10 – 12:15: Group discussions: what should we consider for the future of nystagmus care and research?

Afternoon (PM)
12:15 – 13:15: Lunch
13:15 – 13:30: Group discussions: summary of main points from discussions
13:30 – 14:00: Talk: certificate of visual impairment (CVI)
14:00 – 14:30: Talk: low vision assessment/aids (LVA)
14:30 – 15:00: Coffee break
15:00 – 15:30: Final Q&A and close of the day

Lunch and coffee will be provided, and places (free of charge) will be allocated on a first come, first served basis. Tickets close: Friday 16 November. For enquires please contact Maria Theodorou: maria.theodorou@moorfields.nhs.uk.

This day is funded by Friends of Moorfields with support from Nystagmus Network and IN-vision.

We will not be discussing children services at this meeting. Some of the content and discussions had may not be suitable for children. We are unable to offer childcare facilities on the day.